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The Heart Questions: Zecia’s Story, Gaucher Disease

Nine-year-old Zecia has Gaucher disease, a rare disease where her body does not produce an enzyme to get rid of a specific type of fat. Only a handful of children in Singapore have been diagnosed with this ailment. To manage her condition, Zecia requires fortnightly enzyme replacement therapy for life, which costs her family more than S$24,000 a month. Without treatment, her liver and spleen will swell progressively, affecting her health and life. Further accumulation of the fatty substance in her bone marrow and brain can eventually prove fatal. Your contribution to the Rare Disease Fund could go a long way to alleviating Zecia and her family’s financial burden, giving her an opportunity to live a relatively normal life. For more information about the Rare Disease Fund, please visit https://www.kkh.com.sg/rarediseasefund #RareDiseaseFund