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Gaucher Type 2, Enzyme Replacement Therapy: How it helped Quality of Life.
Parents of a little girl with Gaucher Type 2 talk about how her doctor explained that ERT couldn't save their daughter but would likely help her be more comfortable with no drawbacks. As quality of life was the goal, they elected ERT to reduce the size of her liver and spleen and the infusions were not a big deal. If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.
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