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On Scotland’s Northeast coast lies the Highland city of Inverness, more than 500 miles from the hustle and bustle of London. It’s where the parents of Charlie Gard have moved, hoping for a more peaceful life. Five years have passed since Charlie’s death, but no time or distance has been able to erase the pain they feel every day. And the trauma of the court battle, is very much still with them. Charlie’s mum Connie reflected on those months of trying to get her son to the US for experimental treatment: “We were looking at our little boy and he’s looking back at us and he’s squeezing our hand and he’s still there and we weren’t able to take him. "We just couldn’t believe we didn’t have the parental rights to do so. I still can’t believe it. It’s nearly five years on and I just can’t understand as a parent that you lose those rights, and you can’t try and save your child.” Charlie Gard was born on 4th August 2016 but soon diagnosed with mitochondrial DNA depletion syndrome, a rare genetic disease that caused progressive muscle weakness. Charlie’s parents, Chris Gard and Connie Yates, were embroiled in a five-month legal battle with the hospital where their son was being treated, to gain permission to fly him to the US for experimental treatment. • Subscribe to ITV News on YouTube: http://bit.ly/2lOHmNj • Get breaking news and more stories at http://www.itv.com/news Follow ITV News on Facebook: / itvnews Follow ITV News on Twitter: / itvnews Follow ITV News on Instagram: / itvnews