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Emily’s Sacrococcygeal Teratoma Story: Look at Her Now

Before she was born, doctors discovered Emily had a sacrococcygeal teratoma (SCT) — a tumor located at the base of the tailbone. For more: http://www.chop.edu/fetal20. At their 20-week ultrasound, Eleanor and Matt received the devastating news that their unborn daughter had an SCT, a common tumor found in newborns. Doctors told them that their baby had a 50/50 shot of surviving and mentioned that some people choose to terminate. El and Matt chose to call The Children’s Hospital of Philadelphia’s Center for Fetal Diagnosis and Treatment. They came away calmed, comforted and armed with options. SCT is commonly treated with postnatal resection to remove the tumor after the baby is born, but fetal surgery is an option if fetal hydrops develops, a life-threatening condition that puts both mom and baby at risk. When Emily was born, the tumor made up about a third of her weight. She needed three full blood transfusions before being stabilized, and had surgery to remove the tumor the next day. Her recovery has had its ups and downs but Emily has fought through it all. Now a spunky 2-year-old, Emily is fully caught up with her peers and loves to dance to Taylor Swift and Disney songs.