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Emily Parise at the Living LFS Jennifer Mallory Family Camp 2022 2 месяца назад


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Emily Parise at the Living LFS Jennifer Mallory Family Camp 2022

Emily Parise shares her experiences at the Living LFS Jennifer Mallory Family Camp at Rocky Mountain Village Easterseals Camp in Empire, Colorado, in August 2022. She also talks about the Living LFS support groups for people with Li-Fraumeni syndrome. -- The Living LFS Jennifer Mallory Family Camp provides LFS families and their caregivers with the knowledge, strength, psychosocial tools, and community to manage the myriad challenges associated with having a hereditary predisposition to developing cancer. During family camp, participants have the opportunity to engage with and learn from genetic counselors, LFS researchers, psychologists, and dietitians with sessions like Caring for Your Mental Health and Well-being, Coping With Grief and Bereavement, Let’s Talk Adolescents and Young Adults, Supporting a Balanced Relationship with Food, Movement and Body Image, Genetics 101 (with click-together DNA strands!), Talking to Your Kids About LFS, Navigating Your Medical Care, and Ask a Genetic Counselor. Most importantly, participants get to meet and bond with other families who understand life with Li-Fraumeni syndrome while enjoying fun activities like zip lining, swimming, fishing, disc golf, arts and crafts, wine and paint night, and a talent show, in beautiful locations. Previous Family Camps have been held at Camp Mak-A-Dream in Gold Creek, Montana, and Rocky Mountain Village Easterseals Camp in Empire, Colorado. Living LFS is a 501(c)(3) non-profit organization with the mission to encourage, empower, and educate those living with Li-Fraumeni syndrome by connecting them with care, resources, and others who are Living LFS. Learn more at LivingLFS.org

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