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Natalie's Story

💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: https://ifopa.org/what_is_fop 🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: https://ifopa.org/about_ifopa 👋🏽 CONNECT: https://fb.com/IFOPA   / cure_fop     / ifopa     / international-fop-association   📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: https://ifopa.org/connect 👨‍👩‍👧‍👦 Register for the next Family Gathering: https://ifopa.org/familygathering. Relive sessions from past Gatherings: https://ifopa.org/family_gathering 🛠️ Check out the Ability Toolbox Guidebook featuring tools and home adaptations for independent living: https://guidebook.ifopa.org 📆 Get involved with our family services, fundraising and awareness events: https://ifopa.org/calendar_of_events 📗 Learn the scientific terminology surrounding FOP in the IFOPA Glossary: https://ifopa.org/glossary ❤️ DONATE and join us to fight FOP and support families in their journey: https://ifopa.org/donate 🙋🏽 FOP Frequently Asked Questions: https://ifopa.org/fop_faq #cureFOP #RareDisease #disability #RAREParenting #caregiver