Скачать с ютуб Gaucher Type 2: Mom wants to know what it’s going to be like; Dad doesn’t until he gets there. в хорошем качестве

Gaucher Type 2: Mom wants to know what it’s going to be like; Dad doesn’t until he gets there.

Mom wants to know what it’s going to be like; Dad doesn’t until he gets there. Parents of an infant with Gaucher Type 2 talk about their different wants regarding knowing the disease progression. Dad focused on the data and science and couldn't read the stories. Mom wanted the stories, the connection to others who had gone before. She would watch CPN videos and then select videos for him to watch too. If your child has Gaucher Type 2 or another pediatric life threatening illness, hearing from these parents may help you find your way and see that you are not alone. Visit www.courageousparentsnetwork.org for more videos.