Скачать с ютуб A Conversation with an MPN Specialist: Polycythemia Vera в хорошем качестве

A Conversation with an MPN Specialist: Polycythemia Vera

MPN Advocacy & Education International spoke with Dr. Prithviraj Bose, MD Anderson Cancer Center, to briefly discuss and answer numerous patient questions about polycythemia vera (PV). TIMESTAMPS 00:00 A Conversation with an MPN Specialist: Polycythemia Vera 13:35 Does brain fog come from PV or could it be a side effect of my medication? 14:51 What can I do about the itching? 16:48 How would you compare Jakafi to the other JAK inhibitors? 17:52 Is there a way to tell who will do well on Jakafi? 20:50 What advice do you give to parents of younger children with an MPN? 23:34 Does your allele burden levels correlate to your risk of progression? 26:25 What blood tests confirm that you have the JAK2 mutation? 27:04 What can be done to help with the neuropathy and is this a side effect of PV or the medication I'm taking? 30:03 What are the ideal hematocrit numbers you like to see in your patients? 31:00 Can PV make you more prone to arterial plaque disease in your arteries? 31:35 How can patients manage fatigue and weight gain from PV? 35:04 Do you know anything about rapamycin use for PV? 35:47 Is there any testing to determine how long you have had PV? 37:34 I don't have a gene mutation and was still diagnosed with PV. Is this common? 38:17 What are your thoughts on combination therapy with pegasys and rusfertide? 39:49 Should PV patients be taking iron supplements or trying the carnivore diet if their iron levels are low? 40:35 Can PV contribute to kidney stones? 41:09 Can taking blood thinners or steroids slow down the progression of PV? 41:40 In patients with a high JAK2 mutation and others, how do you maintain a patient in the chronic stage and prevent progression? 43:58 Is PV considered a blood cancer or disease? Can a cure really be found? 45:21 Are stem cell transplants an option for PV patients? 46:30 Is there any correlation between PV and benign heart palpitations? 47:03 Do any medications I take for other issues interfere with inflammation or progression? 48:29 Do you see a lot of patients taking hydroxyurea with mouth sores? 49:22 What causes the itching? 50:12 What is my life expectancy with PV? 52:07 Are bone marrow biopsies necessary and when do you advise to have one done?