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Advocating for Yourself & Others

Living with Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome, or other related conditions can be challenging. Not only do these conditions present physical obstacles, but they also can lead to difficulties in securing understanding and necessary accommodations from those who may not be familiar with them. Here, we provide some guidance on how you can become a more effective advocate for yourself and others in similar situations. There will be a Q&A session at the end of the presentation.