Скачать с ютуб ResearchCon 2024 | Where We’re Going: Adapting CF Care to Evolving Needs в хорошем качестве

ResearchCon 2024 | Where We’re Going: Adapting CF Care to Evolving Needs

Better health and longer survival compel cystic fibrosis care to adapt to meet the needs of people with CF throughout their lifetime. Panelists Cynthia Brown, MD, Chyann Holt, Inka Nisinbaum, and Laurie Snyder, MD, discuss future changes of CF care for all patients, including those who benefit from cystic fibrosis transmembrane conductance regulator (CFTR) modulators, those who do not benefit, and those who have undergone an organ transplant.   Originally recorded May 1, 2024. 00:00 | Where We’re Going: Adapting CF Care to Evolving Needs  02:55 | Chyann’s story and the importance of personalized care   08:30 | Acknowledging how far we’ve come in CF care  10:06 | Recognize how far we have to go   14:15 | What is the ‘just right’ amount of care for people with CF?  16:38 | New triple combination modulator on the skyline   18:50 | How much daily at home care is enough?  20:25 | Are there long-term effects of stopping daily therapy?  23:13 | The evolution of the CF care model   27:30 | Lung transplant numbers for those with cystic fibrosis   28:58 | Newest technology in lung transplant research   31:51 | Cystic fibrosis numbers after lung transplant  33:50 | Chronic rejection after lung transplant   36:16 | What do we do for chronic rejection?  38:38 | What are researchers thinking about when it comes to chronic rejection?  43:38 | Clinical trial focused on lung transplant   44:40 | Learning about The Cystic Fibrosis Foundation’s Lung Transplant Consortium (CFTLC)  46:34 | Inka’s story, lung and live transplant recipient  47:41 | The shared care model for CF and lung transplant