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Damian's G-Tube Surgery (& our hospital life!)

Well this hospital stay was a little longer than I thought it would be! Who knew getting a feeding tube would require so much prep work? For a year, our GI doctor expressed concern for Damian's lack of proper nutrition (which was due to Damian's inability to eat enough and his squished stomach). Finally, it was time to pull the trigger and have a gastrostomy (G) tube surgery so that we could feed him more regularly throughout the day and not worry about him being too tired to eat safely. In case you are interested, the surgery itself is called a "Laparoscopic Gastronomy." I asked the surgeon so many questions beforehand about it that he suggested I type it into YouTube so I could watch someone do it. (Yes, I took his suggestion and found a couple videos) While this new feeding tube life has made life even busier and more tedious than it was before, I'm hopeful that this tool will make a really positive difference in Damian's overall health!! ________________________________________________ 💙ABOUT DAMIAN💙 Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙 ________________________________________________ 💙 PLEASE HELP 💙 GoFundMe: https://gofund.me/24dc59ae Blog & More: https://www.SaveDamian.com ________________________________________________ 💙 AS SEEN IN THIS VIDEO 💙 Stacking Rings Toy: https://amzn.to/44WHzSq