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9 MONTHS on the experimental drug!!! What's better, what's worse 1 год назад


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9 MONTHS on the experimental drug!!! What's better, what's worse

BLOG POST: https://www.savedamian.com/post/9-mon... Here is our 9-MONTH REPORT! As of January 22, 2023, Damian has been on the experimental treatment intended to stop his brain deterioration for 9 months! Unfortunately, Damian has been sick for much of the past 6 months - that, and his growing liver and spleen, have caused a lot of issues that I believe has stunted his progress, and in some areas even made him weaker. Overall, however, we're making progress and in the last month we took a huge leap forward by starting Enzyme Replacement Therapy, the 2nd treatment he needs (FINALLY!!!) The blog post linked above correlates with this video, as there are some notes I've made that didn't really work in video format. THANK YOU ALL FOR BEING HERE, for cheering us on, and for continuing to help us raise the funds needed quickly for the FINAL TREATMENT!!! 💙 ________________________________________________ 💙ABOUT DAMIAN💙 Damian is fighting a terminal genetic disease called ASMD/Niemann-Pick Disease Type A (sometimes referred to as "Baby Alzheimer's") and we're determined to do WHATEVER IT TAKES to expedite the development of treatment and save his life. Please help us #SaveDamian by sharing his story!!! We are SO CLOSE to finally defeating ASMD, for Damian and every child given this death sentence. Thank you 💙 ________________________________________________ 💙 LINKS 💙 GoFundMe: https://gofund.me/24dc59ae Blog and More: https://www.SaveDamian.com ________________________________________________ 💙 AS SEEN IN THIS VIDEO 💙 Tinukim iFeed Self-Feeding Bottle: https://amzn.to/3ukTkCp Links to the toys can be found in our Amazon Storefront: https://www.amazon.com/shop/pleasesav...

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